Privacy Policy

The Alzheimer's Disease and Related Disorders, New York City, Inc. is committed to protecting your privacy when you visit our website TogetherWeCare.org (the “Site”). This policy describes the types of information we may collect from you or that you may provide when you visit the Site or communicate with us by email and our practices for collecting, using, maintaining, protecting and disclosing that information. This policy does not apply to information collected offline or on any other websites, including through any applications or content (including advertising) that may be accessible on the Site or link to it. Our privacy policy may change in the future (please see “Your consent,” below). By visiting or using the Site, you agree to the terms of this policy. If you do not agree with these terms, please do not visit or otherwise use our Site. Information we collect from you is used to improve our site, provide you a better experience, respond to your questions.

Information collection

We collect two types of information on the Site, as follows and as further described in the sections below entitled “Cookies,” and “Log Files”:

• Web server traffic information. This information is used to determine the number of visitors to our site, length of stay and sources of traffic and is collected automatically as you navigate the Site. We collect aggregate data — or totals of those visiting from a domain — not information identifying individual users. We use this information to help improve our Site and our service to you.
  
• Personal information provided by you. If you provide information to be posted on public areas of the Site, fill out a form or survey, request information, we may collect your name, address, city, state, zip code, telephone number and email address or other information by which you may be personally identified (such information is referred to as “Personal Information” in this policy). We collect email addresses and other Personal Information only when you provide it to us.

You may also provide information to be posted on public areas of the Site or transmitted to other users of the Site or third parties, which information may include Personal Information (“User Information”). Your User Information is posted and transmitted to others at your own risk and is subject to the Terms of Use of the Site.

You must be at least thirteen (13) years old to use our Site. We do not solicit or knowingly collect any Personal Information from children. If you are under the age of thirteen (13) you may not use the Site.

Use and disclosure of personal information

The Alzheimer's Disease and Related Disorders, New York City, Inc. collects information on our Site. We do not sell, trade or rent our Site’s visitor’s Personal Information to third parties other than those outlined in this section. If you willingly provide us your Personal Information, the Alzheimer's Disease and Related Disorders, New York City, Inc. may use it in the following ways:

Email Information Requests and Questions. When we respond to your email requests or questions, we may collect your email address and send you Alzheimer's Disease and Related Disorders, New York City, Inc. email bulletins or news. To opt out and remove your name from future emails of this type, follow the unsubscribe instructions in the message.

E-News: When you sign up to receive Alzheimer's Disease and Related Disorders, New York City, Inc. e-news, we collect your email address and may also notify you about other information we think you will find valuable. To opt out and remove your name from future emails of this type, follow the unsubscribe instructions in the message.

Message Boards and Profiles. Please remember that any information you disclose on member profiles becomes public information.

We may also use your Personal Information, transfer or otherwise disclose Personal Information willingly provided by you (i) to service providers and other third parties used to support the Alzheimer's Disease and Related Disorders, New York City, Inc.’ business, (ii) to our affiliates and subsidiaries or a successor in connection with a major organizational change (for example, a change in the Alzheimer’s Associations’ ownership), whether as a going concern or as part of bankruptcy, liquidation or similar proceeding, in which case a notice of the change will be provided on the Site, (iii) to present the Site and its contents to you, provide you with notices about your account, notify you about changes to the Site, and fulfill the purpose for which you provide the information to the Alzheimer's Disease and Related Disorders, New York City, Inc., (iv) if we believe disclosure is necessary to enforce the rights, property or safety of the Alzheimer's Disease and Related Disorders, New York City, Inc. or others, including in order to investigate attacks on the Site and enforce our Terms of Use or other contractual rights, (v) in any way we may describe when you provide the information or for other purposes with your consent, or (vi) to comply with subpoenas, court orders, laws, or requests from law enforcement or other governmental entities. If the law or order requires us to disclose information about your activities on our Site, we will (unless prohibited by law from doing so) attempt to contact you prior to such disclosure, and attempt to disclose to you the fact that we have submitted information to legal authorities (including disclosing which information we have submitted). We will object to disclosure requests that we believe are improper.

Your consent

By using the Alzheimer's Disease and Related Disorders, New York City, Inc. Site, you consent to the collection and use of the information described above. The Alzheimer's Disease and Related Disorders, New York City, Inc. reserves the right to modify or remove portions of this policy at any time, such changes effective immediately upon posting of the revised version on the Site unless otherwise indicated, and any changes to this policy will be posted prior to their implementation. If we make material changes to how we treat your Personal Information, we will post the amended policy on the Site and notify you through a notice on the Site’s homepage. Your continued use of the Site after notification of material changes to this policy constitutes your consent to the changes. The effective date of this policy, as stated below, indicates the last time this policy was revised.

Your choice

We respect your privacy and recognize that you may wish to limit the ways in which we contact you. To make changes to how we use your Personal Information, please follow the instructions described above (under “Use and disclosure of personal information”) or simply send an email to helpline@alznyc.org with the following information:

• To remove your name from mailing lists shared with other organizations, please provide your full name, mailing address and a sentence requesting removal.
• To remove your name from the Alzheimer's Disease and Related Disorders, New York City, Inc. postal mailing list, please provide your full name, mailing address and a sentence requesting suppression of your Personal Information in our files.
• To review or correct your Personal Information with the Alzheimer's Disease and Related Disorders, New York City, Inc., please provide your name and a sentence requesting a review or a correction.

Security

We take precautions designed to protect your Personal Information. At the Alzheimer's Disease and Related Disorders, New York City, Inc., your Personal Information is stored on secure servers and we have policies in place designed to limit access to your information to authorized staff with a legitimate and specific business purpose to access the information. Unfortunately, the transmission of information over the Internet is not completely secure. Although we do our best to protect your Personal Information, we cannot guarantee the security of information transmitted to our Site and any transmission of your Personal Information is at your own risk. If you have any questions about the security of our Site, send an e-mail to helpline@alznyc.org.

Data Retention

The Alzheimer's Disease and Related Disorders, New York City, Inc. recognizes the importance of effective file keeping records and data management to enable it to discharge its functions. This requires, amongst other things, a data and record retention policy.

Information collects from users of the site:

• are stored appropriately having regard to the sensitivity and confidentiality of the material recorded
• are retrievable and easily traced
• are retained for only as long as necessary
• are disposed of appropriately to ensure that copyrights are not breached and to prevent them falling into the hands of unauthorised personnel

This policy applies equally to photographic, microform and electronic media that are used to store records as well as more traditional paper or card records. The period of retention only commences when the record is closed.

All data and records should be stored as securely as possible in order to avoid potential misuse or loss. All data and records will be stored in the most convenient and appropriate location having regard to the period of retention required and the frequency with which access will be made to the record.

Data and records which are active should be stored in the most appropriate place for their purpose. Data and records which are no longer active, due to their age or subject, should be stored in the most appropriate place for their purpose. The degree of security required for file storage will reflect the sensitivity and confidential nature of any material recorded. Any data file or record which contains personal data of any form can be considered as confidential in nature.

Data and records should not be kept for longer than is necessary. No data file or record should be retained for more than five years after it is closed unless a good reason for longer retention can be demonstrated. It is to be emphasised that the period of five years is a maximum period. It may well be appropriate having regard to the nature of the record to opt for a shorter period.

Reasons for longer retention will include the following:

• Statute requires retention for a longer period
• The record contains information relevant to legal action which has been started or is in contemplation
• Whenever there is a possibility of litigation, the records and information that are likely to be affected should not be amended or disposed of until the threat of litigation has been removed
• The record should be archived for historical or research purposes, e.g. the record relates to an important policy development or relates to an event of local or national purpose
• The records are maintained for the purpose of retrospective comparison
• The records relate to individuals or providers of services who are judged unsatisfactory. The individuals may include employees who have been the subject of serious disciplinary action

Destruction And Disposal Statement

All information of a confidential or sensitive nature on paper, card, microfiche, or electronic media must be securely destroyed when it is no longer required.

• When records or data files are identified for disposal in the Policy are destroyed, a register of such records needs to be kept.
• The procedure for the destruction of Confidential or Sensitive Waste on paper, card or microfiche is as follows:
• All office quality white or coloured paper should be mechanically shredded if the content is in any way sensitive.
• If you dispose of waste by using the shredder, ensure that it is used safely in accordance with its operating instructions, and that waste is shredded in such a way that it cannot be put back together again, and made comprehensible
• All other paper can be disposed of in the boxes or bins provided in offices for environmentally-friendly disposal of white non-confidential and non-sensitive paper waste.

Cookies

A cookie is a piece of data sent to your Web browser and stored on your hard drive. Cookies help us improve our Site by tracking and targeting the interests of our users as they visit different sections of our Site. Cookies do not contain any Personal Information. You can set your browser to refuse some or all browser cookies, or alter you when cookies are being sent. Please note that if you disable cookies, some areas of the Site may not be accessible or function properly.

Log files

We collect and use IP addresses to analyze trends, administer the site, track visitors’ movements and gather broad information for aggregate use. IP addresses are not linked to Personal Information.

Effective Date

The effective date of this policy is 4/2019.